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Small Talk: The Prayer Closet


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16 minutes ago, MarysWetBar said:

I'm only sad that my impromptu and spontaneous lifestyle is going to be impacted but just need to have a plan for next time or just stay home. 

that is tough. i know what i can order at each restaurant yet i still check the g/f options on the menu. one thing i am not good at knowing is alcohol beyond that i know i can't have beer (which sux on a hot day). .

  • Love 2
1 hour ago, Sew Sumi said:

I'm glad you all have received the proper diagnosis so you can live your lives without discomfort/pain any longer. <3

I just got back from the dermatologist, who gave me the "official" 5 years cancer-free card. My actual surgery was 5 years last week (it came up as a memory on FB), but now it's confirmed. I may be white as a ghost, but I'm a healthy ghost. :D

That is the best news!! Big hugs!!!

  • Love 3

I feel the pain of my celiac suffering fellow snarkers. Mr lookeyloo has food sensitivities - particularly to cow dairy. We can work around it but have to ask a lot of questions and read labels all the way to the end.  His reaction is a severe migraine. So many people say "you can cheat just this once". Except not. Until we found out what was causing the migraines we both really had no life. We couldn't plan anything or go anywhere. He was sick a lot of the time. He said if he were ever sentenced to death he would ask for lasagna and cheesecake. In an hour he would be begging for death. So y'all can do it!  Stand strong!! 

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2 hours ago, MarysWetBar said:

Thanks so much! 

Funny story: I was out  on the weekend and a group of ppl i was with decided to order KFC. I said i was fine and not to worry about me. The one lady almost was angry with me. .like disgusted. .when she pulled the skin off her chicken and attempted to hand me the meat off HER OWN FORK SHE HAD JUST HAD IN HER MOUTH! ! 

I politely declined and said i wasn't even hungry ( i lied) and basically suffered through an hour of smells etc that literally turned my stomach. 

I explained that i am an adult and can do without. .made a joke about having a year of fat and stores inside me. .but it was like i was offending her in some way. 

I'm only sad that my impromptu and spontaneous lifestyle is going to be impacted but just need to have a plan for next time or just stay home. 

OMG, nobody needs a lack of support or understanding when they're trying to adjust their lifestyle to a new diagnosis. There are people who are ignorant, and like to blow it off as a craze.  People with celiac don't get a choice...it's literally a matter of life and death for them.  You're not trying to be a special snowflake.

You'll just have to think about what you CAN still  have vs what you can't. Like you said, as a grownup, it's easier to deal with going without.   You will soon be missing out on diarrhea, cramps, bloating, itching, headaches, brain fog, swelling, and farting like an English Bulldog. 

One thing that's really delicious is pao de quejo, which is that Brazilian cheese bread. It's made with yuca flour, which is tapioca flour. They make it that way as the original recipe and its soooo good! It's addictive.  It's easy enough to make at home, but you can buy it frozen already made. Chebe brand is really tasty.

  • Love 3
2 hours ago, Sew Sumi said:

I'm glad you all have received the proper diagnosis so you can live your lives without discomfort/pain any longer. <3

I just got back from the dermatologist, who gave me the "official" 5 years cancer-free card. My actual surgery was 5 years last week (it came up as a memory on FB), but now it's confirmed. I may be white as a ghost, but I'm a healthy ghost. :D

What wonderful news, SEW SUMI! Thank you for sharing. By the way, my lovely, "natural" tan is thanks to Loreal Sunless Tanner. 

  • Love 1

Gluten is in some cosmetics and vitamins and supplements. My beloved Naturtint fair color does contain wheat protein.  It never bothered me,. Gluten in my hair versus actually swallowing it, I can pick that battle since I don't seem to have a contact allergy to it. People with severe allergies and intolerances can't be too careful.

interesting that gluten can be smelled.  I never thought of that. I know my trips to the bathroom are less smelly (sorry TMI) on non gluten days, but I never thought I would be able to smell it in the baked goods aisle,

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Hi celiacs!! Hubby was diagnosed in 2002. I made this recipe for Christmas with adjustments.

  1916804_10153214059336121_6383666051347470240_n.jpg  It was awesome! We tend to host the big dinners (Christmas, Thanksgiving etc) now because it's easier for me to just make stuff gluten free. But, as has been shown by everyone here, it's a very supportive and helpful community. The above was made using King Arthur's Gluten Free mix almost exclusively and it has been a great find. Hubby has not missed beer at all, but since it always made him sick (surprise, surprise) he doesn't have any really good associations with it. I don't like beer either, so it's been a delight to have cider. I loooove cider. And wine is gluten free, too. Because we have to cook a lot of stuff from scratch, we can taste the difference in processed foods. Having said that, we even found a good Chinese place that has excellent gluten free. Though at this point I prefer the gluten free tamari sauce to soy sauce.

The newest challenge has come from a friend who is gluten free and vegan. But I look at it as creating a sonnet--there are rules that I have to follow, but I have a lot of stuff I can still work with and can make something fabulous.

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48 minutes ago, emma675 said:

MarysWetBar, did your doctor tell you to start taking probiotics, too? I'm not celiac but I have gut issues from years of thyroid problems and my doctor has me on a good probiotic that is designed for people with celiac. It's freaking expensive but it works amazingly--it's called VSL #3.

No i have a list of questions for next time i see him though. I asked family dr for referral to dietician and I'm assuming the gastro guy will hopefully be more knowledgeable regarding the celiac. ..i hope? 

Have read  a bunch online though and you guys have been so much help!  ?

I'm planning to primarily try to stay away from the processed GF stuff if i can stand it..moderate use if any. 

I need to heal before i start getting fancy. 

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Fellow snarkers...I've got a question for you all.  I've been suffering from edema in my legs for about 5 years, but it had only recently become intolerable. When it first presented, I was in the throes of peri menopause...heavy bleeding, bloating, swelling, headaches, etc.. OBGYN said it was common in my stage of life and tokay off salt...he also suggested with some of the abdominal pain issues to lay off wheat since he had a celiac granddaughter. I felt better after I did but over time, the edema just got worse. I got a referral to see a vascular surgeon who diagnosed me with a reflux in a vein above my knee and recommended a laser procedure. 

I'm a big freaking baby...can't stand needles so some local anesthesia is involved. But I'm tired of dragging around a heavy achy leg and low activity will make venous insufficiency worse. Anyone had this done? They make it all sound so easy.  My poor granny had vein stripping done in the 60s or 70s and had trouble all her life. Glad they only do that now rarely. What should I expect from this laser surgery? How soon do I notice the change?

  • Love 1
1 hour ago, emma675 said:

MarysWetBar, did your doctor tell you to start taking probiotics, too? I'm not celiac but I have gut issues from years of thyroid problems and my doctor has me on a good probiotic that is designed for people with celiac. It's freaking expensive but it works amazingly--it's called VSL #3.

VSL3 is excellent, and much better than over the counter probiotics.  It has billions and billions (really, literally, billions) of the little buggers in each packet, and I find when I have one a day for several days I feel clearer and my gut and bowels are calm.  It's very expensive (billions of the little buggers) and you can't let it get hot or even warm or they will die (do not put in a shirt pocket, for example).  Also, if you get a prescription for antibiotics for any reason, stop taking the probiotics, cause the anti could murder 'em.

  • Love 1
1 hour ago, Arwen Evenstar said:

Fellow snarkers...I've got a question for you all.  I've been suffering from edema in my legs for about 5 years, but it had only recently become intolerable. When it first presented, I was in the throes of peri menopause...heavy bleeding, bloating, swelling, headaches, etc.. OBGYN said it was common in my stage of life and tokay off salt...he also suggested with some of the abdominal pain issues to lay off wheat since he had a celiac granddaughter. I felt better after I did but over time, the edema just got worse. I got a referral to see a vascular surgeon who diagnosed me with a reflux in a vein above my knee and recommended a laser procedure. 

I'm a big freaking baby...can't stand needles so some local anesthesia is involved. But I'm tired of dragging around a heavy achy leg and low activity will make venous insufficiency worse. Anyone had this done? They make it all sound so easy.  My poor granny had vein stripping done in the 60s or 70s and had trouble all her life. Glad they only do that now rarely. What should I expect from this laser surgery? How soon do I notice the change?

Oh my. Sending sympathies. Only thing I can say is daughter in law had terrible painful varicose veins after the three grands were born and she finally got some surgery which made the pain and whatever swelling she has (not sure it was edema) go away. Things are more advanced than they were. Wishing you a good outcome. 

  • Love 2
1 hour ago, lookeyloo said:

Oh my. Sending sympathies. Only thing I can say is daughter in law had terrible painful varicose veins after the three grands were born and she finally got some surgery which made the pain and whatever swelling she has (not sure it was edema) go away. Things are more advanced than they were. Wishing you a good outcome. 

Thanks, Lookeyloo...even if it won't fix the edema, I'll be grateful to get rid of the swelling and the feeling that I'm having to work too hard for walkabouts.

  • Love 2
(edited)
3 hours ago, zoomama said:

is it rx? where can i find it?

At vsl3.com, or search the net.  We tend to order the 30 pack of boxes, each of which has 30 sachets, each of which is a dose...  My mother spreads it over the day, keeping the open sachet in the fridge.  I do one once a day...  It works out to about $1.00/packet.  As I said earlier, not cheap.  

We've been doing taking it for so long that I forgot to add, the company suggests you take it under medical supervision, as it is considered to be a medical food.  So add it to the list of questions for your doc.

Edited by kassygreene
Adding useful info!
  • Love 3
14 hours ago, kassygreene said:

VSL3 is excellent, and much better than over the counter probiotics.  It has billions and billions (really, literally, billions) of the little buggers in each packet, and I find when I have one a day for several days I feel clearer and my gut and bowels are calm.  It's very expensive (billions of the little buggers) and you can't let it get hot or even warm or they will die (do not put in a shirt pocket, for example).  Also, if you get a prescription for antibiotics for any reason, stop taking the probiotics, cause the anti could murder 'em.

That's interesting about the antibiotics killing the probiotics.  It makes sense yet I have taken the probiotics to help with the diarrhea & stomach issues that come with taking antibiotics.  I was on a 2 week course of heavy duty antibiotics & probiotics worked wonders. My husband has irritable bowel syndrome & the OTC probiotics have helped immensely.  It's amazing  how they work. 

Regarding the vein surgery, my husband's cousin had some type of varicose vein surgery on his legs last year.  His job has him on his feet all day.  He couldn't believe the great results & wished he would have had it done sooner. 

  • Love 1
1 hour ago, Barb23 said:

That's interesting about the antibiotics killing the probiotics.  It makes sense yet I have taken the probiotics to help with the diarrhea & stomach issues that come with taking antibiotics.  I was on a 2 week course of heavy duty antibiotics & probiotics worked wonders. My husband has irritable bowel syndrome & the OTC probiotics have helped immensely.  It's amazing  how they work. 

Regarding the vein surgery, my husband's cousin had some type of varicose vein surgery on his legs last year.  His job has him on his feet all day.  He couldn't believe the great results & wished he would have had it done sooner. 

Thanks, Barb. I mostly have a sit down job, but my hobby (photography) requires a lot of standing since I'm a glutton for punishment. I can sit down to run my B&W film for the most part, but darkroom printing is 5 to 15 minutes per print...and it's like making roux for gumbo...you gotta watch the pot..can't walk away.  Sitting down is a pain, since you just leave a stool for someone else to bump into.  Even with safelights, we aren't looking at the floor.  I would move around while running the prints, but the problem was still there, but I might have kept it from getting worse.

Glad to know it made a huge difference to your family member. Now that I know I've had venous insufficiency, I have to be mindful to elevate my legs properly and often enough after my fix...you can always get another vein problem somewhere else, so preventing further damage is a good idea. I felt validated that something wasn't quite right, so even though I'm far from being a hypochondriac, having the right diagnosis, makes all the difference in the world. 

Right now, I feel like the guy in the Python sketch who said he'd "got a gammy leg".

On 7/17/2016 at 10:02 AM, Arwen Evenstar said:

Thanks for the birthday wishes. I'm 50 today...Mr E and I are getting our celebration on!

Happy birthday and enjoy the Eff You 50's where I am told you are allowed to no longer give a damn.  I cannot wait to be there (2 years).  Although I may have turned my 40's into the Eff You 40's.  

  • Love 3
(edited)

Sorry, off subject...

i just stepped outside with my iPad in my hand.  It's SO HOT and the humidity is so off the charts, that when I looked down, my screen had a haze on it.  

Happy birthday, Sew!!!  Wait, is it Arwens b'day too???  Twins from different mothers!  Happy birthday to you, too!

Edited by Happyfatchick
  • Love 2

Well, things are getting even more interesting/complicated...I don't recall whether I mentioned, while posting about issues with elderly parents, but my husband, who retired from the Navy a little over a year ago (after 38 years!) is up for a job (which they sought him out to apply for) in Virginia. We live in Connecticut, and selling the house is not an option at this point (we just bought it about 3 years ago and have put a TON on work into it), but we figured we could do the semi-long-distance thing for a few years, as it's really a fantastic opportunity, flights between here and there are fairly cheap & easy, and he'd be much closer to his mom, and could potentially even move her in with him if she truly cannot live independently anymore, and if none of his other 6 siblings are willing to help out. It wouldn't be easy, but I could be here for my parents and he could be there for his mom. He has an interview there in a couple of weeks, and they seem very interested in him.

So we had pretty much sorted out most of the whys and hows, when he drops a second bombshell! Another old ex-Navy friend called him out of the blue (coincidentally less than half an hour after my husband had asked me to look up his contact info because he thought he might be helpful in preparing for the interview), and tells my husband that he'd recently accepted a job in Nova Scotia, and it turns out that they are also looking for someone with exactly my husband's qualifications, and when his name came up (he's known and legendary in certain Navy/ex-Navy circles), the response was "Get him". So he's turning a resume in to them in the morning...

Now, Nova Scotia, you understand, is somewhere we have both always wanted to go. It has a firm grasp on the both of us for some reason, so even if this would be one of the least practical things to do, we can't ignore it. I'd still stay here for the most part, but the idea of being able to escape the heat of the Summer up there sounds heavenly. The "commute" is far more pricy and complicated, so he wouldn't be able to come back every weekend or two...But it sounds sooooooo tempting! 

Anyway, at the very least, we get free airfare, rental car, and hotel out there for a few days to check it out...that's how interested they are, which works out incredibly well as we had actually planned on finally getting up there later this summer, but weren't sure whether we really wanted to spend the money right now.

  • Love 15
2 hours ago, emma675 said:

Happy birthday, Arwen!!

I have a phone interview scheduled for tomorrow for a job I applied for yesterday. And I find out on Monday if I'm being laid off or not. Crazy times.

Thanks for the birthday wishes...Good luck with your job interview, Emma, and I hope you don't have bad news thus coming Monday.  Like one wise engineer once told me...either you're on the list or you're not, and they decided that months ago.

1 hour ago, Love2dance said:

Happy birthday, ARWEN, wherever you celebrate!! Enjoy!

Thank you, Love2Dance....and thanks to anyone else I missed who gave me a shout out.

  • Love 3
(edited)
7 hours ago, Arwen Evenstar said:

@Sew Sumi,

Thanks for the birthday wishes. I'm 50 today...Mr E and I are getting our celebration on!

Maybe, I'll get a drippy sundae aaaaaaaaaaaaaaaaaand a day of grace from the prayer closet.

You're a couple months younger than my baby brother. Okay, he's not THAT much younger than I am, but now we have established ages, RESPECT YOUR ELDERS. :p

Seriously, I could tell we were the same generation from your posts. Our tastes are scarily similar, down to the drag queens. :D

Emma, good luck on the interview! 

I wish I had more to add, but my life is all about elder care this summer. It seems like she has a doctor's appointment every.fucking.week. And to be frank, at 84 her health is probably better than mine! She only takes thyroid and BP meds, and her BP is only marginally high. That's it. She's just brittle as hell and had three falls in  the last 18 months. Yesterday, she was finally recovered enough from the latest (broken humerus) to get her to the audiologist to adjust her hearing aids. From the broken hip, she now requires a walker and cannot maneuver stairs. The worst thing with her, however, is that she suffers from depression and severe anxiety. So, there was a doctor's appointment LAST week to up her anxiety meds. She calls us in tears multiple times a day over the smallest of things. But even though she can't hold a dinner plate (albeit a very sturdy one) in one hand to wash it, she is TOTALLY resisting going into assisted living. With that and her selective hearing (she definitely uses her hearing as a way to deflect a lot of stuff), she's a very frustrating, negative person. It just sucks my husband and I dry. Hence, I come here for some relief. 

I dread going back to work at the end of August for Fall semester, because she always seems to have her accidents about a week into the semester, making my life especially miserable. I await what she will bring around Labor Day. In the meantime, I have to get a stupid crown done, but man, she'll find a way to suck me in to coming over to her place for "something" next Wednesday when I get the big work done and I can't move my lips. Count on it. 

/end rant

(this is why I don't come here often...sorry ladies and Koka) :)

Edited by Sew Sumi
I needed to vent
  • Love 8
(edited)
31 minutes ago, Sew Sumi said:

she is TOTALLY resisting going into assisted living.

Having been down that road, I suggest talking to her doctor before the next appointment if you can.  Go ahead with her son and look at places and get her to look if you can.  Get the Cali forms that have to be completed and and get them done.  The next time she falls and has a major injury suggest a two week stay in assisted living or ask the doctor if he/she will tell mama that is the best thing to do.  A lot of the places have respite care for a few days to a few weeks.  You still have to get the same package of medical forms done so it's good to have them in advance.  Once she's in assisted living, the doctor can tell her as can you that she needs to stay a little longer until the doctor says it's OK to go home, until she's a bit stronger, until xxxxx. 

I was among the lucky few who had a mother who thought it looked like the thing to do. 

Edited by Absolom
  • Love 4
(edited)

She's actually in a senior living facility that transitions one from independent to dependent living situations. Another fall is inevitable, even in assisted living. She now walks around her apartment without either her cane or her walker. Her last two falls have been in her apartment, one at about 1:30 am going to the bathroom (compound fracture of the wrist last August). 

Her issue is that she just assumes my husband (who works a swing shift at the hospital) and I can just up and leave work to deal with her panic attacks. She compares her situation, in which she says she has "no help," despite all we do and a hired caretaker once a week to help with shopping and laundry, to others who she claims ALWAYS have their children there to help. I tell her that maybe they have money, and one person is able to be a caretaker. She wants control, then she throws all of her cash and valuables at us. Then she wants them back. I'm still in possession of her wedding set (soo tiny, the rings barely get over the first knuckle of my pinky....about a size 4...my ring finger is a 6). 

Paraphrasing Shakespeare (because I lecture on PLAGIARISM lol), she is tiny, but she is fierce. Unfortunately, she uses her fierceness in totally destructive ways. *I* am tiny and REALLY fierce. 

Edited by Sew Sumi
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(edited)
7 minutes ago, Sew Sumi said:

She's actually in a senior living facility that transitions one from independent to dependent living situations. Another fall is inevitable, even in assisted living. She now walks around her apartment without either her cane or her walker. Her last two falls have been in her apartment, one at about 1:30 am going to the bathroom (compound fracture of the wrist last August). 

Her issue is that she just assumes my husband (who works a swing shift at the hospital) and I can just up and leave work to deal with her panic attacks. She compares her situation, in which she says she has "no help," despite all we do and a hired caretaker once a week to help with shopping and laundry, to others who she claims ALWAYS have their children there to help. I tell her that maybe they have money, and one person is able to be a caretaker. She wants control, then she throws all of her cash and valuables at us. Then she wants them back. I'm still in possession of her wedding set (soo tiny, the rings barely get over the first knuckle of my pinky....about a size 4...my ring finger is a 6). 

ARRRRRGH! 

I know I t's so easy for me to say, SEW SUMI, but it really might be time for some tough love. And it sounds like she is in the right place since she can transition to the more dependent living. For your sanity, I think you and your hubby will need to do it. I'm not sure you should even wait for the next fall which could be disastrous. But I agree with Absolom that that might be the easiest time to do it. Sending hugs and hope for the best. Hang in there.

Edited by Love2dance
Chose better words

Happy birthday, too, Sew! I hope you're able to come to a resolution with your situation. It's not fun when a person holds you hostage essentially, esp. a loved one. I pray I'm never like that if I live to be that old--it's something I take great pains in avoiding now, I hate having to ask others for help or be a burden.

It's only a 15-20 minute, get to know you type interview tomorrow, but I've got pages of notes and have done my homework, so hopefully it goes well.

  • Love 1
1 hour ago, Sew Sumi said:

@crazycatlady58 MY birthday was LAST month. I just remember that Arwen said that she had the dubious honor of celebrating what would have been her 18th birthday on the day the Duggars got hitched. 

1984 was a banner year. LOL

I am so sorry , hopefully   I wished you happy  birthday  then. If not a very belated birthday  wish.

  • Love 1
21 minutes ago, Love2dance said:

I know I t's so easy for me to say, SEW SUMI, but it really might be time for some tough love. And it sounds like she is in the right place since she can transition to the more dependent living. For your sanity, I think you and your hubby will need to do it. I'm not sure you should even wait for the next fall which could be disastrous. But I agree with Absolom that that might be the easiest time to do it. Sending hugs and hope for the best. Hang in there.

Trust me, I'm all about the tough love. You've seen my posts on the Duggar forum! LOL My SIL, who got away from this woman, lives in NJ and is in charge of her financial portfolio. She and I are in constant contact with this and recognize that this a sooner rather than later issue. We know that the time is coming sooner rather than later. She handles the finances, as she is also a lawyer and has a license to practice in CA, which will help us later down the road. Since I have summers off, I can deal with her minutae in a more timely manner than when school is in session. FOR NOW. I've told her that I can't quit my job to take care of her, which she seems to expect, having never worked after marriage. 

  • Love 1

I feel your pain, Sew Sumi. My dad is currently in 24x7 home care as a result of wandering and many many hallucinations and possible dementia. His goal is "when am I going to get out of here?!?" My sister and I thinking the next step is likely assisted living; his thought is he needs to get rid of these people in his house all the time. Even though he cannot drive due to temporal lobe seizures. I get it--this is really hard for him, but it is also really hard for us (sister lives ~45 miles away, I live ~2500 miles away, we lost our mom to Alzheimer's nine years ago). Nothing constructive other than good thoughts and energy from the place where I know how hard it is to take care of aging parents.

  • Love 4

Jyn,I am assuming since you mentioned Navy and NS you mean Halifax.That is where our naval base is in the east.Both my son and his wife were stationed there before transferring to the west coast.I am in PEI the land of Anne of Green Gables so only a 4 hour drive.Right now it is hot 28C.No break from the heat although we do tend to get a breeze at night.Another place to visit would be the Bay of Fundy.A bit of a drive but worth it especially if you watch the tides go in and out.Good luck with either choice.

(edited)
13 minutes ago, chunky junky said:

Jyn,I am assuming since you mentioned Navy and NS you mean Halifax.That is where our naval base is in the east.Both my son and his wife were stationed there before transferring to the west coast.I am in PEI the land of Anne of Green Gables so only a 4 hour drive.Right now it is hot 28C.No break from the heat although we do tend to get a breeze at night.Another place to visit would be the Bay of Fundy.A bit of a drive but worth it especially if you watch the tides go in and out.Good luck with either choice.

A "hot" 28? I'll take that...it's supposed to hit about 35 here this week (going by the Centigrade to Fahrenheit converter I looked up...I never remember how to do that), but this week supposed to be mainly in the 90's/high 80's, and continue in the same vein for the rest of the month. August can be even worse.

I'm not sure where the job is, to be honest...I only talked briefly to my husband about it last night and he didn't have a lot of details yet either (he's still staying with his mom in Delaware at the moment, though coming home for a few days today before heading back out there for a couple of weeks). Halifax sounds likely, though, as the company must be affiliated with the Navy somehow. 

I'll know more about it in the next couple of days.

Edited by Jynnan tonnix
  • Love 2
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