Gramto6 October 31 Share October 31 2 hours ago, shapeshifter said: I early voted yesterday. Thankfully it was unseasonably pleasant because I waited in line for half an hour. My son-in-law waited in line on Saturday for almost 2 hours. I'm not sure what I'll do next time. Maybe mail-in. I have voted Absentee for about 15 years. That way I can take my time and not feel rushed at the polls. I would never go back to in person. I mailed my ballot last week and it is done. 2 Link to comment
shapeshifter October 31 Share October 31 1 hour ago, Gramto6 said: 3 hours ago, shapeshifter said: I early voted yesterday. Thankfully it was unseasonably pleasant because I waited in line for half an hour. My son-in-law waited in line on Saturday for almost 2 hours. I'm not sure what I'll do next time. Maybe mail-in. I have voted Absentee for about 15 years. That way I can take my time and not feel rushed at the polls. I would never go back to in person. I mailed my ballot last week and it is done. Oh dear. I shouldn't have posted about voting in this thread. Feel free to take this to the Chit Chat thread. This is why I didn't want "Chit Chat" in the Health thread title, but I guess that's just my problem. Link to comment
Absolom October 31 Share October 31 Thanks for the reminder. I almost posted about voting following the crowd. 1 1 Link to comment
annzeepark914 November 2 Share November 2 On 10/31/2024 at 9:20 AM, shapeshifter said: 😆 I early voted yesterday. Thankfully it was unseasonably pleasant because I waited in line for half an hour. My son-in-law waited in line on Saturday for almost 2 hours. I'm not sure what I'll do next time. Maybe mail-in. I did mail-in several weeks ago. So easy. I was planning to do early voting, but just the thought of maybe having to stand in line changed my mind (makes my back ache just thinking about a long line 😸). 1 Link to comment
Absolom November 3 Share November 3 Mail in every time for me unless I dawdle and decide to do a ballot drop off on election day. I know if it's postmarked that day it still counts, but I'm not that trusting of the USPS. I've already been informed the ballot was counted. 1 Link to comment
PRgal November 6 Share November 6 Had my mammogram yesterday. Because of the surgery I had in June, it was A LOT more uncomfortable than normal (and it normally is due to my itty bitty ones). I swear the surgery took a little bit of tissue out too..... :( 6 Link to comment
PRgal November 11 Share November 11 Trigger: bodily fluids alert!!! I did my 24 hour urine test. Good news: my creatine levels are normal again (though on the low end). Nothing's wrong with my kidney function and it was all due to low muscle mass (which was kind of on the "duh" side...they literally TOOK MUSCLES OUT OF MY BODY when I had my surgery!!! And combine that with not training for three months and barely doing anything with dumbells above 5 lb). 2 5 Link to comment
AheadofStraight November 12 Share November 12 On 10/21/2024 at 3:00 PM, shapeshifter said: Tomorrow is my weekly equipment washing day. I am also going to switch to a different mask (F&P Solo, with the hose connector in front of the nose) that I was using with moderate success with those horrible, deceptively-named nasal "pillows." I will be replacing them with a nasal cushion, which the PA recommended to me at my visit after 3 months and countless wasted efforts with the DME folks. Wondering how you are doing with the F&P Solo cushions? I got a CPAP 12 nights ago and that's exactly what I have. Been wondering if I should explore other options. I like it but I find it difficult as a side sleeper to get a position that I really like without it feeling like the cushions are pinching my nostrils shut. I bought a CPAP pillow that has cut-outs to make it easier but I'm not sure how much it has helped. Link to comment
shapeshifter November 12 Share November 12 24 minutes ago, AheadofStraight said: Wondering how you are doing with the F&P Solo cushions? I got a CPAP 12 nights ago and that's exactly what I have. Been wondering if I should explore other options. I like it but I find it difficult as a side sleeper to get a position that I really like without it feeling like the cushions are pinching my nostrils shut. I bought a CPAP pillow that has cut-outs to make it easier but I'm not sure how much it has helped. I'm glad to have someone else here to commiserate with!😉 The nasal cushions were much better than the so-called nasal pillows, even though the F&P nasal pillows are not as stabby as the the others. But the tension on the Solo headgear made it too tight. I had a crease on the "columella"(?) of my nose in the morning. Not painful or red, but I figured there had to be something better. When I stretch the Solo, it just goes back to the same tightness. Does yours do that too? Or is the one they gave me for free in the office defective? I'm now using the ResMed AirFit N30 with a nasal cushion (not nasal pillows). I finally got the "new"(2023?) version of the mask frame without 35 holes around the nose that blow gale force winds all night. I guess in lower-economic areas they just keep discontinued stock to pass out to patients??? I like that the N30 just a bit of elastic cloth on the side of my face. You might like that too? (https://eshop.resmed.com/products/airfit-n30-complete-mask-system) While I was waiting for the new N30 frame to arrive, I alternated between the Solo and the N30i, both with nasal cushions, not pillows (can you tell how much I hate the nasal pillows, LOL?). And I'm still loving this bed pillow. I plan to get more: On 10/20/2024 at 11:21 AM, shapeshifter said: Just so you don't think everything is going to hell, I finally found wonderful pillows: amazon.com/gp/product/B0BX2Q4RC2 1 Link to comment
AheadofStraight November 12 Share November 12 (edited) @shapeshifter Interesting - no creases on my face at all. Though I feel like I have to reposition the straps on my head back into place at least once or twice per night. Wondering if my head is just larger than normal lol. I do feel that it gets tighter if I move, esp on my side and then I have to pull it out to loosen it a bit again. I'm claustrophobic so just this much of a mask has been a challenge, to say the least. The nasal pillows terrify me though I read with a deviated septum they might help (and I do have one). It's funny that you mention the n30 - I just purchased a p30i with some n30i cushions. (The mask is interchangable between the two.) The "i" version is with the hose overhead I guess. Hmmm, I hadn't seen the one you mentioned. It is frustrating that there are so many choices and they aren't cheap. I found a fb group where people sell them at a discount so I may try a few that way. Edited November 12 by AheadofStraight 1 Link to comment
shapeshifter November 12 Share November 12 7 hours ago, AheadofStraight said: . It is frustrating that there are so many choices and they aren't cheap. I found a fb group where people sell them at a discount so I may try a few that way. Were you given one or more masks to start that were covered by insurance? I did buy one mask part through Amazon, but quickly realized my insurance covers most of it, and the sleep doctors' office has some to spare for trying too. This YouTube video does a pretty good job of describing the different types if you still need an overview: https://youtu.be/6qNmIzVpr4Q I don't know what I'm going to do with the extra masks I've accumulated once I'm sure which ones are "extra." I wish I could donate them, but I don't think that's advisable for health reasons, even though I'm a clean freak. I'm surprised people are selling used masks on FB, if that's what you meant? Link to comment
AheadofStraight November 13 Share November 13 13 hours ago, shapeshifter said: Were you given one or more masks to start that were covered by insurance? I did buy one mask part through Amazon, but quickly realized my insurance covers most of it, and the sleep doctors' office has some to spare for trying too. I was given 1 mask (after telling her my preferences and trying a couple on) and told that in 30 days I'm allowed to switch once. Not very useful! I have to say though that I've slept pretty well the past 2 nights with the Solo so maybe that will work out okay. Thanks for the video! On facebook, they seem to be new masks in sealed packages - I have no idea on the sourcing of them though! 1 Link to comment
SoMuchTV November 15 Share November 15 So our daughter (age 30) came by and showed us this horrible looking rash (series of bumps, actually) on her torso. We were talking through what it might be - fleas from her cat? Possible mold reaction from recent water leaks into her apartment? New laundry detergent? Probably not measles or chickenpox since she had the vaccines. And oh yeah she was in a hot tub at a friend’s house last weekend. So with our encouragement she went to the urgent care, and the doctor’s first question was, have you been in a hot tub lately? Apparently Hot Tub Folliculitis is a thing! And yes she has alerted her fellow hot tubbers. So, the more you know… 1 1 6 Link to comment
Absolom November 15 Share November 15 It used to be a regular topic of discussion when hot tubs first came out. 1 3 Link to comment
PRgal November 18 Share November 18 On 11/14/2024 at 9:43 PM, SoMuchTV said: So our daughter (age 30) came by and showed us this horrible looking rash (series of bumps, actually) on her torso. We were talking through what it might be - fleas from her cat? Possible mold reaction from recent water leaks into her apartment? New laundry detergent? Probably not measles or chickenpox since she had the vaccines. And oh yeah she was in a hot tub at a friend’s house last weekend. So with our encouragement she went to the urgent care, and the doctor’s first question was, have you been in a hot tub lately? Apparently Hot Tub Folliculitis is a thing! And yes she has alerted her fellow hot tubbers. So, the more you know… I once got a weird rash shortly after downing some Mike's Hard Cranberry Lemonade, a vodka based cooler. But I'm not sure it was because I was allergic to the drink itself, since I'm not allergic to cranberry, lemon OR vodka! Or I was just allergic to BAD vodka. Note: the drink is actually really gross. You're better off mixing your own lemon Cosmopolitan. 1 Link to comment
Browncoat November 18 Share November 18 (edited) I had a bone density scan today, and learned that I have osteoporosis. Dammit. My numbers are *just* in the osteoporotic range, but still. I have chosen, for the time being, to attempt to make things better with diet and exercise, but the doc was kind of pushing medication. Apparently I'm a good candidate for the one where you have to give yourself a shot every day. In the stomach. For a year. I noped out of that one right quick! The others are a once-yearly infusion, which sound less bad, but I always worry about side effects. Anyone here using any osteoporosis meds? Any opinions on them? Edited November 19 by Browncoat 5 1 Link to comment
Absolom November 18 Share November 18 I did Forteo (daily injections) and you do get used to it. It's a teeny tiny needle. I had jelly legs over doing it at first but did get over it. The worst part was traveling with medication that had to be kept chilled. Of course, I did more required travel that one year than I usually do in five. I had no reactions to it after the first three days or so. My bone density did respond very, very well to it. The pills don't work on me so I have to do injections. Right now I'm on Prolia which is twice a year and I do it myself. 5 Link to comment
shapeshifter November 18 Share November 18 1 hour ago, Browncoat said: Apparently I'm a good candidate for the one where you have to give yourself a shot every day. In the stomach. For a year. I started the injections for osteoporosis in 2020 because they said it was just for a year. Then I moved across the country, and they (docs) said after that year, I'd have to take the oral version of the same medicine for the rest of my life. I had taken the oral version 20 years ago for 2 years and went off because of side effects, which I told the first doctors in my previous town. So I went off the injections. My local doctor here said to increase my calcium and D3 supplements, so I did, and my bone density improved. More recently she said I should get my calcium from food sources. That's not possible. I cannot consume the amount of food necessary to do that. BTW, I hate needles, but I got over the injection thing. If you do it right, you don't even feel it. I needed to do daily injections for a month after abdominal cancer surgery in 2016 so I wouldn't have a fatal or stroke-inducing blood clots. The doctor who taught me how to do it was really good at his job, especially dealing with people with a fear of sticking needles in themselves. 2 Link to comment
Browncoat November 19 Share November 19 1 hour ago, Absolom said: The worst part was traveling with medication that had to be kept chilled. Oh, that would absolutely be a problem. I like to travel a lot -- headed to New Zealand in a week! 47 minutes ago, shapeshifter said: My local doctor here said to increase my calcium and D3 supplements, so I did, and my bone density improved. More recently she said I should get my calcium from food sources. That's not possible. I cannot consume the amount of food necessary to do that. I had blood drawn today to test my D3 levels so I'll have an idea what level of supplementation I need. I hope to have that info before leaving the country, and can either take the supplements with me, or purchase them in NZ. And you are right -- it takes a lot of food to get the RDA of calcium. I'm trying not to gain weight! 3 Link to comment
Absolom November 19 Share November 19 (edited) 34 minutes ago, Browncoat said: Oh, that would absolutely be a problem. I like to travel a lot -- headed to New Zealand in a week! At the time I was on it, the company gave me an insulated travel case and freezer pack. I also had a spot for a copy of the prescription. We had to watch where we stayed so I'd have fridge with a freezer and also make sure we were back in the room or someone's home at close to the same time every night. Edited November 19 by Absolom 2 2 Link to comment
StatisticalOutlier November 19 Share November 19 6 hours ago, shapeshifter said: More recently she said I should get my calcium from food sources. That's not possible. I cannot consume the amount of food necessary to do that. I couldn't agree more. And it's not just calcium--it all nutrients. If I ate enough food to provide all the nutrients they say my body needs, I'd be as big as a house, and miserable, because I'd be stuffed all the time. So I decided many years ago to eat whatever I want without regard to nutrients, and take a multivitamin and calcium. Although according to Johns Hopkins calcium supplements may not work and may actually be harmful. https://www.hopkinsmedicine.org/health/wellness-and-prevention/calcium-supplements-should-you-take-them Which leads me to the second prong of my approach: avoid going to the doctor. I might be a rotting mess inside, but I look and feel pretty good so I'm not going to look for trouble. 2 2 1 Link to comment
Yeah No November 19 Share November 19 I don't have osteoporosis but I have read in a few places about not taking calcium. So I take a lot of other supplements recommended to help prevent it and strengthen bones. I take a quite a few of the ones on this list (thanks to Google AI): Vitamin D: Helps the body absorb calcium and phosphorus into bones Vitamin K: Works with vitamin D for bone health, and vitamin K2 is especially effective for improving bone density Magnesium: Helps the body absorb calcium and use it properly, and also helps convert vitamin D into its active form Boron: Can reduce the amount of calcium lost from bones and teeth each day Isoflavones: May reduce the risks of excess estrogen while still providing some of estrogen's benefits, such as preventing osteoporosis Vitamin C: Promotes bone renewal by suppressing cells that destroy bone and stimulating the body to produce bone-building cells Other supplements that may help strengthen bones include: Copper Dehydroepiandrosterone (DHEA) Eicosapentaenoic acid (EPA) and docosahexaenoic acid (DHA) Folic acid, vitamin B6, and vitamin B12 Manganese Silicon Strontium Zinc The ones I don't take are copper, boron, folic acid, silicon, strontium, manganese, isoflavones, DHEA, EPA and DHA 4 Link to comment
Browncoat November 19 Share November 19 And of course, my D3 levels are low, so it has been recommended that I take a supplement for that, as well as a calcium supplement. <sigh> @StatisticalOutlier makes a great point. I was a lot happier before I found all this out! I wasn't afraid of falling last week, but now I kind of am, knowing my bones are extra fragile! 3 Link to comment
Yeah No November 20 Share November 20 3 hours ago, Browncoat said: And of course, my D3 levels are low, so it has been recommended that I take a supplement for that, as well as a calcium supplement. <sigh> @StatisticalOutlier makes a great point. I was a lot happier before I found all this out! I wasn't afraid of falling last week, but now I kind of am, knowing my bones are extra fragile! I hear you. My fear of falling is growing all the time as I get older. I fell on Friday the 13th of September and I was surprised at how well I did overall. I tripped on the last step up to a wood porch but I know it probably would have been tragic if it happened on concrete. I barely bruised my right shin but my leg swelled up a lot, and even after it healed and the swelling went way down my right leg is still swelling a bit more than it did before. I know I have mild lymphedema in my legs as it is, but this made it a little worse in my right leg. So now it's a little fatter than it was before and my pants leg feels tighter, especially up at the top of my thigh. People say they don't notice it but the doctors and I do. So early tomorrow morning I'm going for a CAT scan to see what's going on in my abdomen and pelvis and if there's a blockage causing the lymphedema. (I've already been told it's a lymph drainage issue, not a vascular one). They and I already suspect the large fibroid in my uterus of causing or at least exacerbating the lymphedema as well as a urinary urgency issue. So depending on what they find I might want to try uterine artery embolization to shrink the fibroid, which is the least invasive procedure or hysterectomy if they think that would work better. Also, on Thursday I'm going for lymphedema therapy in my legs, which will involve evaluation and lymph drainage massage as well as fitting me for compression stockings and garments. I've already been wearing the stockings for years but now I'll get the professionally fitted, more expensive ones through Medicare, and probably other things. I hear that people generally report at least a 30% reduction in the swelling as a result of this therapy and in milder cases like mine it can be permanent. So here's hoping. At least I'm close to making progress now! Anyway, the moral of the story is that even without osteoporosis, falling after 65 can cause other problems, so it's always something! I'm usually so much more careful and I rarely fall but there is always a chance of it happening so I continue to be afraid. BTW I take 2,000 mg. of D3 in the Summer and switch to 5,000 mg. in the Winter. That higher dose helps my SADS, which I also suffer from. Since I've been taking that dosage my SADS has gotten a lot better. When I had my D level tested several years ago it was at the low end of normal toward the end of the Summer and that was before I took supplements. So I'm pretty sure it dips lower in the Winter and I need all I can get. 2 1 Link to comment
shapeshifter November 20 Share November 20 On 11/12/2024 at 10:19 AM, AheadofStraight said: I found a fb group where people sell them at a discount so I may try a few that way. What is the name of the fb group? I see several. BTW, Did I mention that I've stopped using water? The first time was by accident and I slept better. I checked with the doctor and she said it was only "for comfort." WTH? I wish I'd known that when I started in the most humid part of the summer. Link to comment
AheadofStraight November 20 Share November 20 1 hour ago, shapeshifter said: What is the name of the fb group? I see several. BTW, Did I mention that I've stopped using water? The first time was by accident and I slept better. I checked with the doctor and she said it was only "for comfort." WTH? I wish I'd known that when I started in the most humid part of the summer. Good news on lack of water making things better! We're heading into winter which is typically dry so I'm keeping it on but will keep that in mind if I have issues. Can I PM you with the FB info - can give you info on the seller I was recommended and she did deliver and I got what I paid for. Not sure it would be ok to put that stuff on there. Link to comment
shapeshifter November 21 Share November 21 8 hours ago, AheadofStraight said: Can I PM you with the FB info - can give you info on the seller I was recommended and she did deliver and I got what I paid for. Not sure it would be ok to put that stuff on there. I had actually started a PM to you but then decided to post here first in case you preferred sharing more broadly — figuring you'd suggest PMing if that was better.😉 So. Yes, please.😊 I'm going to look into further tweaking the settings on my machine too, probably following this guy's methods: https://youtu.be/qKN4pW3qYEs My son-in-law has an SD card I can put in the machine to gather the more detailed data than is reflected in the feedback you get from the machine which does not reflect what I'm experiencing, like when it says I had "no mask leaks." Link to comment
AheadofStraight November 21 Share November 21 10 hours ago, shapeshifter said: I had actually started a PM to you but then decided to post here first in case you preferred sharing more broadly — figuring you'd suggest PMing if that was better.😉 So. Yes, please.😊 I'm going to look into further tweaking the settings on my machine too, probably following this guy's methods: https://youtu.be/qKN4pW3qYEs My son-in-law has an SD card I can put in the machine to gather the more detailed data than is reflected in the feedback you get from the machine which does not reflect what I'm experiencing, like when it says I had "no mask leaks." I will send a PM in a few minutes! I heard there is a free program we can load on our PCs called "Oscar" that allows all kind of detailed info. I have the tab open but just haven't attempted it yet! May be what your SIL is using? Link to comment
shapeshifter November 21 Share November 21 (edited) 2 hours ago, AheadofStraight said: I will send a PM in a few minutes! I heard there is a free program we can load on our PCs called "Oscar" that allows all kind of detailed info. I have the tab open but just haven't attempted it yet! May be what your SIL is using? I did download OSCAR (Open Source CPAP Analysis Reporter), but haven't used it yet because I needed to get an SD card and wasn't sure it was worth it. My SIL doesn't use CPAP, but he does have a spare SD card I'm going to get this weekend. My daughter used to snore* when she was a kid, so maybe the stuff I'm learning will be useful to them some day — or maybe by then they'll have technicians trained to make these adjustments for CPAP users instead of just shrugging and reminding us that 50% of CPAP patients give up. *I don't snore; I just stop breathing. This CPAP YouTuber has some other free software that I might try first instead of OSCAR: https://youtu.be/qKN4pW3qYEs After watching about ½ of the video (before falling asleep as I do since starting CPAP, which it's supposed to prevent) I figured I could at least make the range between my high and low pressure settings smaller, which I did in the "Clinical Home" settings on my ResMed Airsense 11 machine (was 4-9, I changed it to 4-7) and slept much better without air whooshing me awake like he explained in the video. At 13.50 in the video, he suggests turning on the EPR (Expiratory Pressure Relief), which I think(?) I had turned off in an effort to stop the noisy expiratory wind whooshing, but maybe with the Pressure setting Range tighter, I can turn it on again. I try to make changes during the day or when first going to bed, but sometimes it has to be in the middle of the night, because the alternative is to rip off the nasal mask, which means I'm just going to be waking up several more times choking. Edited November 21 by shapeshifter Link to comment
AheadofStraight November 21 Share November 21 Interesting! I saved your video links to watch after work! I have the same machine. 1 Link to comment
Ancaster November 22 Share November 22 I used to love my new doctor. He listened to me, he was on time but never made a visit seemed rushed. Now I hate him with a passion because as part of my treatment for an ongoing issue, he has prescribed "shapewear", ie, Spanx and their ilk. Next time I see him, I'm going to give him homework - wear a pair of Spanx for 24 hours straight and see how that feels. 2 Link to comment
PRgal November 22 Share November 22 2 hours ago, Ancaster said: I used to love my new doctor. He listened to me, he was on time but never made a visit seemed rushed. Now I hate him with a passion because as part of my treatment for an ongoing issue, he has prescribed "shapewear", ie, Spanx and their ilk. Next time I see him, I'm going to give him homework - wear a pair of Spanx for 24 hours straight and see how that feels. I'm sure there's guy shapewear out there..... 2 Link to comment
Absolom November 23 Share November 23 Ask and we'll find the answer: https://www.amazon.com/TAILONG-Shapewear-Underwear-Compression-Slimming/dp/B0CP245MRN/ref=asc_df_B0CP245MRN?mcid=00d47d9082843a3e838b90470619a6b9&tag=hyprod-20&linkCode=df0&hvadid=693128908538&hvpos=&hvnetw=g&hvrand=1662364685568207834&hvpone=&hvptwo=&hvqmt=&hvdev=c&hvdvcmdl=&hvlocint=&hvlocphy=9031279&hvtargid=pla-2283144508725&psc=1 First result on Google. There are plenty more. 1 Link to comment
Ancaster November 23 Share November 23 (edited) 40 minutes ago, Absolom said: Ask and we'll find the answer: https://www.amazon.com/TAILONG-Shapewear-Underwear-Compression-Slimming/dp/B0CP245MRN/ref=asc_df_B0CP245MRN?mcid=00d47d9082843a3e838b90470619a6b9&tag=hyprod-20&linkCode=df0&hvadid=693128908538&hvpos=&hvnetw=g&hvrand=1662364685568207834&hvpone=&hvptwo=&hvqmt=&hvdev=c&hvdvcmdl=&hvlocint=&hvlocphy=9031279&hvtargid=pla-2283144508725&psc=1 First result on Google. There are plenty more. I was just going to go with a tin of Quality Street for the office for the holidays - now I know what else to get as a special extra (though on a shallow note, he already looks pretty "vibrant and sharp in any ensemble..") ;-) Edited November 23 by Ancaster 2 Link to comment
Gramto6 November 26 Share November 26 (edited) On 11/12/2024 at 7:28 AM, shapeshifter said: And I'm still loving this bed pillow. I plan to get more: On 10/20/2024 at 9:21 AM, shapeshifter said: Just so you don't think everything is going to hell, I finally found wonderful pillows: amazon.com/gp/product/B0BX2Q4RC2 I ordered the standard size pillows last night. They are on Amazon Black Friday Sale price -21%. I paid $45.95 for the standard size pair and they are coming Friday!! Edited November 26 by Gramto6 2 Link to comment
shapeshifter November 26 Share November 26 10 minutes ago, Gramto6 said: I ordered the standard size pillows last night. They are on Amazon Black Friday Sale price -21%. I paid $45.95 for the standard size pair and they are coming Friday!! I saw that and ordered another pair too. 🙌 1 Link to comment
Yeah No November 26 Share November 26 On 11/22/2024 at 4:12 PM, Ancaster said: I used to love my new doctor. He listened to me, he was on time but never made a visit seemed rushed. Now I hate him with a passion because as part of my treatment for an ongoing issue, he has prescribed "shapewear", ie, Spanx and their ilk. Next time I see him, I'm going to give him homework - wear a pair of Spanx for 24 hours straight and see how that feels. Maybe he felt you needed compression to help your issue and wanted to spare you the expense of compression garments if shapewear would work just as well. I have a male friend that had to wear a compression garment after his hernia operation. Like this: Click Here for Amazon Link I have to wear compression hose for mild lymphedema in my legs. Speaking of that, I have decided to go for lymphedema therapy after bruising my right leg a few months back caused my right leg to swell very slightly more than my left on a permanent basis. I am told that the therapy will help reduce the swelling and prevent the condition from worsening. It's a 4-6 week intensive program wearing wraps and going for massages with the therapist but they say that afterward you can manage the condition on your own but you have to wear the compression hose every day (which I do anyway but now I'll get a few for free per year and they'll be measured to fit me correctly unlike the OTC ones I wear). The only catch is I couldn't get an appointment to start the therapy until mid March of 2025. Unbelievable! 2 Link to comment
Dimity November 26 Share November 26 Has anyone ever gotten, what I think are hives, for no apparent reason? I am thinking possibly stress related as my diet hasn't changed in anyway. Whatever the reason thank god for benadryl! Link to comment
fairffaxx November 26 Share November 26 If your medical provider offers telehealth (wretched "word" but that's what they call it) services, you could take a photo of your hives & show it to a dermatologist via computer & get an expert opinion as to the cause (vs. waiting 6 months for an appointment in the Dr's office). But I was told long ago that sudden skin eruptions are often caused by stress, so you could also just try yoga & that will make you feel better about life in general. Link to comment
Dimity November 26 Share November 26 6 minutes ago, fairffaxx said: But I was told long ago that sudden skin eruptions are often caused by stress, so you could also just try yoga & that will make you feel better about life in general. Good suggestion. The Chocolate Diet sure isn't working! Link to comment
fairffaxx November 26 Share November 26 And, of course, chocolate can cause skin eruptions such as hives.... Link to comment
Dimity November 26 Share November 26 8 minutes ago, fairffaxx said: And, of course, chocolate can cause skin eruptions such as hives.... If I end up being allergic to chocolate...well I just give up! 1 Link to comment
shapeshifter November 26 Share November 26 9 hours ago, Yeah No said: The only catch is I couldn't get an appointment to start the therapy until mid March of 2025. Unbelievable! Sometimes if I go in person to ask if there are any cancellations they are miraculously able to find something in a couple of days. Link to comment
shapeshifter November 26 Share November 26 1 hour ago, Dimity said: Has anyone ever gotten, what I think are hives, for no apparent reason? I am thinking possibly stress related as my diet hasn't changed in anyway. Whatever the reason thank god for benadryl! Yes. With me it's always turned out to be contact dermatitis, which nowadays they are diagnosing as eczema instead of hives or prickly heat etc. If you haven't changed any soaps or shampoos or laundry detergents or started pool exercises, it's still possible the company who makes your soaps etc. has changed the formula. Don't get me started on Dial "fragrance free" antibacterial hand soap lately with "fragrance" listed in the ingredients, or their "Aloe" version without the fragrance listed but so obviously in it.👃🦨 Same with so-called "free and clear" dish soaps and laundry sheets, although they're finally starting to put fine print on the label that just says "no dyes" and nothing about perfume or fragrance at all. If you call to complain (I have) their script is to say that the scent is a natural part of the chemicals listed and not an added fragrance. I guess that means wherever the chemicals are now being manufactured, they are adding fragrance, and that is somehow "natural." Anyway, I recently got a prescription cream/ointment for a patch on my arm that had been there for almost a year. It went away in less than 2 weeks applying the stuff twice a day most days. It says on the label: Betamethasone Dipropionate Ointment (Augmented), 0.05% But I don't think it's for hives that cover a large area. Maybe ask your doctor. Hot baths can be a trigger too, but I'm not giving up my hot baths or my chocolate any time soon. 1 Link to comment
StatisticalOutlier November 26 Share November 26 I hope they're better at making pillows than they are at anatomy: 9 Link to comment
Yeah No November 30 Share November 30 On 11/26/2024 at 11:55 AM, shapeshifter said: Sometimes if I go in person to ask if there are any cancellations they are miraculously able to find something in a couple of days. They have me on a computer controlled waiting list which will automatically send me a text message if an appointment comes up sooner. My intake appointment would have been at the end of January but I already had it last week because I got called from the waiting list. So hopefully it will happen again. 1 Link to comment
shapeshifter November 30 Share November 30 12 hours ago, Yeah No said: They have me on a computer controlled waiting list which will automatically send me a text message if an appointment comes up sooner. My intake appointment would have been at the end of January but I already had it last week because I got called from the waiting list. So hopefully it will happen again. Cool. Hopefully here in Rochester NY they'll start bypassing the human interface for cancellations too. Or maybe they already have in some places, just not for the CPAP/Sleep Center? 1 Link to comment
Gramto6 December 1 Share December 1 On 11/25/2024 at 7:14 PM, Gramto6 said: I ordered the standard size pillows last night. They are on Amazon Black Friday Sale price -21%. I paid $45.95 for the standard size pair and they are coming Friday!! Quoting myself... Last night was the first night I slept with the new pillow. Used just the two, medium and large, I'm a side sleeper. I woke up with no sore neck and my mouth was not dry as it has been. Slept really well, best in a long time and that was just one night! Tonight I might try putting in the small one too just to see if there is any difference. The directions say either combo for side sleepers. I give it a 5 star at this point. Will report back in a few days to tell if it still is!! On 11/25/2024 at 7:14 PM, Gramto6 said: Just so you don't think everything is going to hell, I finally found wonderful pillows: amazon.com/gp/product/B0BX2Q4RC2 (Shapeshifter's quote above) 1 2 Link to comment
shapeshifter December 1 Share December 1 2 hours ago, Gramto6 said: Quoting myself... Last night was the first night I slept with the new pillow. Used just the two, medium and large, I'm a side sleeper. I woke up with no sore neck and my mouth was not dry as it has been. Slept really well, best in a long time and that was just one night! Tonight I might try putting in the small one too just to see if there is any difference. The directions say either combo for side sleepers. I give it a 5 star at this point. Will report back in a few days to tell if it still is!! (Shapeshifter's quote above) Great! Just in case you want to return it, my 2nd set of 2 were delivered Nov. 26, and it says I could return them until Jan 31, 2025, so, a little over 2 months. Currently I'm sleeping with 2 of the inserts inside 2 pillow cases so I can bunch it up to go around my CPAP sleep mask + hose while sleeping on my side. It's perfect that way. I have another with all 3 inserts in the outer pillow that I use to lean against if I want to watch TV for a bit while sitting up. It's comfy enough that if I fall asleep like that I don't have any aches or pains. OMG. I sound like one of those late night TV sales pitch people. And I'm doing it for a MY PILLOW!!! 🤣 Okay. I'm the Good Pillow Pitchwoman. The other one is the Bizarro Pillow Pitchman. You know. Like Bizarro Superman: Quote …Bizarro was created when Superman was exposed to a "duplicate ray."…under "Bizarro logic"…it was a crime to do anything good or right… https://superman.fandom.com/wiki/Bizarro 1 Link to comment
GHScorpiosRule December 1 Share December 1 (edited) I know this is a weird and maybe a “why would you even mark this “ type of milestone, but it did set and complete the path for me being in remission: 10 years ago I began the chemo that would last for the next five months, every three weeks. I will forever be peeved at my employer at the time for making me coordinate our office move-KNOWING I had just had first dose two days before-as his own mother was a cancer survivor. I was nauseous all day- and the copious cans of ginger ale didn’t help. But I had an amazing oncology team and the nurse immediately changed my meds when I called her after I got home, and the new one helped, because the food tasted like sawdust, I forced myself to eat and by the time appetite returned, it was time for the next fusion. I had to wait a month and a half for my mom to come from India (she and my dad had just returned to India after my mastectomy-they stayed for one and half months) and she forced me to eat the meals she made. I am grateful that I have my health, but shallowly, I hate I had to to take this route as a make sure to get all the cancer due to the location of the lump, because my hair never grew back the way it was. I’m still constantly self conscious because the top and crown still look like someone took a weed whacker to it. And who would have thought I would miss the 30-45 minutes it took to blow dry my hair? Now it takes 15, and the thickness is gone. But I keep reminding myself I have my health. And I am. 10 years remission!🥂🙌🏽🥂🙌🏽 Edited December 1 by GHScorpiosRule 2 4 4 Link to comment
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