Thank you so much 😊,
I do have plenty of time to myself, mainly because she sleeps a great deal. This does result in her waking up at any time and it seems mostly when I’m trying to sleep. I do have an alarm that alerts me when she swings her legs out of bed, but a dropped cup, pillow or quilt can also set the alarm off all through the night which adds to my level of fatigue.
There are people coming in four times a day to wash and clean her, I can go out for half an hour to do some shopping when she’s asleep and I’m sure I could get someone to sit with her for a few hours, but what would I do?
Before she became bed bound I used to find all sorts hidden in drawers and cupboards in her bedroom, packets of microwave rice, a pack of uncooked duck pancakes that she’d eaten, apparently without any ill effect.
To those who’ve never experienced this sort of illness, it’s impossible to explain the things that can happen and what it’s like trying to manage it, my father died a long, slow, hideous death caused by Parkinsons and Dementia, so watching my Mother go through something similar is doubly painful.
Im not the one really suffering, so it’s just a case of looking after them as they looked after you, it is what it is, and thank you again for your comments.🙂