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S05.E12: Tracey's Story


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I have to say, after all the recent episodes where unsanitary conditions seemed to be the norm, I was pleasantly surprised to hear Anthony remark about his concern for whether the people washed their hands who prepared some food that they bought while on their trip.

He seemed to be a great caretaker for Tracey, and quite a fastidious person, both in his personal grooming as well as in the home. It was such a refreshing change of pace to see after the recent filth and level of slovenly habits.

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On 3/23/2017 at 10:59 PM, 55Unicorns said:

What is that little black cap Anthony wears all the time?  It looks like a piece of pantyhose.

In my part of the world, they are called 'Do Rags.' Like the other poster said, they make waves AKA 'Do's.' As in 'Hair-Do's.'

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Many years ago, back in the mid-90's, I worked in marketing.   While planning a sales meeting in Houston (my company was in a different state), I met with a guy who job it was to help companies find places to host events. He told me that Houston had more restaurants per capita than any other city in the US. And I do remember when I went there, that there were tons of restaurants (and some amazing food) - and virtually nothing else to do.

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On March 22, 2017 at 8:12 PM, ShortyMac said:

Anthony (2nd husband) admitting to liking being needed.

I'm watching right now and Anthony just told her get to the lymphodema specialist on her own ? DUDE - her legs are 200 lbs each ( at least, wait till after her leg surgeries are done and she's more mobile if you're sick of being her nursemaid) . Maybe he's worried she'll lose weight and leave , I'm going to be pissed if he continues this attitude while I watch grrrrrrr .  This woman has got a tough road ahead with these mass surgeries Ouch!! 

ninja edit :: did Anthony have a job while they were in Ohio ? That was never made clear but in Houston he does. Yay she made it to the specialiiat with an aide. I hope she does well , I liked her . Her kids said she was a great mom and weirdly her top half wasn't that big ( by 600 lb life standards ) Right before Dr Now said it I thought , why does she need WLS after the masses are off and she doesn't ! 

Edited by DNR
Ninja edit
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1 hour ago, ChristmasJones said:

Many years ago, back in the mid-90's, I worked in marketing.   While planning a sales meeting in Houston (my company was in a different state), I met with a guy who job it was to help companies find places to host events. He told me that Houston had more restaurants per capita than any other city in the US. And I do remember when I went there, that there were tons of restaurants (and some amazing food) - and virtually nothing else to do.

There are plenty of things to do in Houston, but you have to look for it. There are musea, there's art, a large number of theater productions, there's music, plenty of parks, malls, and in 1 hour you're at the beach (and while you're there, don't forget to walk through old Galveston).

Edited by Aw my lahgs
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Dr Now was pretty upbeat and positive this episode ?. Glad to see Tracey hop in the front seat of her van . Hope she has an amazing life now with her kids & grandkiddies ! 

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1 hour ago, DNR said:

Dr Now was pretty upbeat and positive this episode ?. Glad to see Tracey hop in the front seat of her van . Hope she has an amazing life now with her kids & grandkiddies ! 

He sure was!  My theories:

* Tracey was an honest patient.  She owned her actions.  How refreshing!

* Dr Now is an accomplished vascular surgeon.  This patient had such a different problem, I suspect he relished the challenge and change of pace.  I'm betting that not too many doctors have seen such an extreme case of lymphedema.

Every time I watch the show, I am hoping that there are dozens of young doctors working along side him to learn from the master. 

------

Total change of topic - I just finished up the 64th of 64 ounces that my cardiologist told me to drink daily, along with eliminating Diet Coke. 

We talk about diet and nutrition so much in here, I thought I'd mention WATER.  Those patients all seem to gulp down so much pop/soda!  I'm always surprised that Dr Now doesn't tell them:
* NO NO NO pop, even diet
* NO NO NO sugary drinks at all
* YES - 64 ounces every day.  EVERY DAY.

Drinking so much water really helps me keep weight stable, besides the other benefits.

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On 3/24/2017 at 3:41 PM, MichelleTX said:

It's legal as long as the lid is taped down and no straw in it. Sounds crazy I know. We actually have gone through and picked one up but didn't drink any until we got home. 

I had to look and see if we had drive thru liquor stores in Iowa. Apparently we do, but the lists seem mostly to be convenience stores. Yup - get your gas and liquor at the same time. Actually, I find this less shocking than I did when I first moved here and found hard liquor in the drug store. I've lived where there were state stores and just don't think of going in to get bread and whiskey in the same place. I don't drink anymore, but it sure would be convenient if I did!

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On 3/24/2017 at 3:04 PM, xwordfanatik said:

I had a white coworker that wore one.  I jokingly called it his "don't" rag.  He thought that was funny.

Gotta love a guy with a sense of humor.  That's one of the things I like best about my husband.

THAT is too f*%@ing funny!  I totally agree on the funny husband thing, as long as they don't make you the butt of their every joke.

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4 hours ago, Trees said:

 

We talk about diet and nutrition so much in here, I thought I'd mention WATER.  Those patients all seem to gulp down so much pop/soda!  I'm always surprised that Dr Now doesn't tell them:
* NO NO NO pop, even diet
* NO NO NO sugary drinks at all
* YES - 64 ounces every day.  EVERY DAY.

Drinking so much water really helps me keep weight stable, besides the other benefits.

We have seen episodes where he tells them NO soda.  They just don't it every episode.  He's explained that the carbonation can expand the stomach and undo the surgery.

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6 minutes ago, Ocean Chick said:

* NO NO NO pop, even diet

Why  not the diet? I know it's probably because it's full of chemicals, but I like to drink a diet soda every few days with dinner. Polar Orange Dry, omg I love it.

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6 hours ago, chickenella said:

Why  not the diet? I know it's probably because it's full of chemicals, but I like to drink a diet soda every few days with dinner. Polar Orange Dry, omg I love it.

*Drooling* Goodness, I miss drinking pop. I had my gastric sleeve done this past May 2016 and I've just reached my goal weight (132 pounds lost - yay!) All that to say, the thing I miss most is drinking bubbly sodas/Perrier water/etc... Totally worth it, but the drinking water all day every day gets old sometimes, I will admit! :)

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On 3/24/2017 at 1:39 PM, TicketToHellPaid said:

Sadly I can't find much in this episode to keep my ticket to hell. I do find it odd that Dr Now decided to just start cutting the swellings off. Why didn't the lyphodema Dr. do that if that was necessary?  Why didn't they show therapy with compression on the legs and massage to get the fluid out.

I actually did a little bit of research on the condition she has, which I think someone up thread mentioned.  It is called lipedema, which isn't exactly like lymphedema.  Here is a link from wikipedia:

https://en.wikipedia.org/wiki/Lipedema

Apparently, according to the wikipedia entry, it is not easily diagnosed.  Taken straight from wikipedia, "It causes a symmetrical accumulation of fat in the subcutaneous tissue that disproportionately affects the lower limbs from buttocks to ankles."  It also goes on to explain the difference between lipedema vs. lymphedema, as well as describing a further condition called lipo-lymphedema which can occur due to the excess fat accumulation causing lymphedema to the effected areas due to a slowing of the lymph flow caused by the fat deposits.  Very enlightening.  It might explain why the change in her diet alone resulted in her ability to lose weight and not require her to have surgery, as she really has no control over this condition.  It isn't her bad eating habits so much as this disease.

Edited by Dru Blood
typo
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18 hours ago, Banshee said:

Actually I sort of liked Tracey. At least she seemed to have something between her ears. I thought her husband might be on the down-low. But then my gaydar isn't the best. 

I think he was just soft spoken. 

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Ok so I watched the super sized episodes with Tracey. She's got a lot of medical issues! IIRC she has congestive heart failure and had a small stroke that affects her ability to swallow (snark-can't be too much of a problem!) She is losing an amazing amount of weight on her own without WLS, good for her. A few things about Tracey caused some snark for me: She's 45 and a grandmother with multiple grandkids? Sounds very young to me. I also got grossed out by Tracey putting an entire nugget in her mouth. We have seen so much worse in other episodes but for some reason it bothered me. And while her husband was so supportive I just wish they would eat the same foods together. If he gets a craving, hop in the car and grab some fast food away from the house... 

I would like to see a follow up episode that includes a makeover. I bet Tracey would love and look great with some new makeup and hair, just a bit of change in that area can make women feel great! 

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9 minutes ago, KateHearts said:

It's lymphedema!!!

Lymphedema and lipedema are two different things.  According to searches on Google, lymphedema is most often caused when the lymph nodes are destroyed by cancer treatments.  Lipedema, on the other hand, is more of a hormonal issue.  Tracey's looked more like Lipedema, and I don't recall their mentioning that she had ever had cancer treatments.

From Webmd:

Symptoms of Lipedema

The typical symptoms are a large lower half and column-like legs, which are often tender and bruise easily. For example, the top half of your body may be a size 8, but the bottom half may be a size 16.

As the condition progresses, fat continues to build up, and your lower body grows heavier. The lipedemic fat can later collect in the arms."

===========

ETA:  It's similar-sounding conditions and doctors like Dr. Now with accents that make it difficult for my friend, who is a medical transcriptionist!

Edited by AZChristian
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9 minutes ago, KateHearts said:

It's lymphedema!!!

Actually KateHearts, I really do think it's lipedema.  As I stated up thread, if you look at the images of individuals with lipedema, they look more like Tracey then people with lymphedema, which isn't usually as symmetrical as Tracey's was.  A large proportion of people diagnosed with lymphedema have an asymmetry to the swelling.  Tracey's legs looked like two giant telephones poles, equally huge.

3 minutes ago, AZChristian said:

Lymphedema and lipedema are two different things.  According to searches on Google, lymphedema is most often caused when the lymph nodes are destroyed by cancer treatments.  Lipedema, on the other hand, is more of a hormonal issue.  Tracey's looked more like Lipedema, and I don't recall their mentioning that she had ever had cancer treatments.

Yesss!  And the lipedema sufferer can actually get lymphedema on top of it making the swelling even worse, which I suspect had happened to Tracey.

Edited by Dru Blood
typo
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I live in southeast Ohio and have two chronic medical conditions, Multiple Sclerosis and Inflammatory Bowel Disease which is considered idiopathic since they can't find a reason and have ruled out the common causes. It's probably been ten years or so now, but The Cleveland Clinic would not see me for a bowel issue because they said they had nothing to offer that I hadn't already undergone locally, even though the local hospitals and doctors could not figure it out and my 70-year-old neurologist said hadn't seen anything like it in his career, but didn't think it was neurological. 

Both West Virginia University and Ohio State University said they would see me in consult to decide if there was anything they could offer for my local doctors to try, and I made the trek to OSU several times over the next six months before they agreed there wasn't anything else they could do differently than I could have at home, but would accept me back if something changed or my condition became worse, since by that time I had stabilized.

Since then, I have heard numerous complaints about TCC not accepting referrals or seeing a patient once, doing the same tests they have already had here and discharging them with no follow-up except to their primary care physician. TCC was contacted once by a local paper and the publicist insisted that they do not refuse referrals, and a doctor in the article said it was pretty common and they rarely referred patients there any longer. I cannot find that article on my quick search, and now wonder if it was newsstation. I did find several complaints from individuals about it, though. TCC has some specialized equipment and also does some experimental therapies that are not widely available, which is why people wanted referrals there. They also run nonstop commercials in my area. It's probably not uncommon for medical providers like TCC to not accept referrals if they didn't think they could help a patient, but then they should quit advertising they they are the last chance for people. The Cancer Center of America is another medical provider that advertises like it is the last chance, refuses referrals, or does the same treatment and tests the patients were already undergoing at home, which sometimes results in the insurer not paying again, and the patient being responsible.

TL:DR - The Cleveland Clinic may not have accepted her, and her condition may not have responded to the therapies that were tried locally. At her weight, she was high-risk for surgery, especially anesthesia, and even if she had insurance, the co-pays to undergo the lipidemia would probably be bankrupting.

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On 3/22/2017 at 7:22 PM, Michael Stabosz said:

The next episode will be a Mega-sized, 4 hour 2-parter aired in the 2 successive weeks.  But this doesn't sound particularly promising....

On March 29th

Steven and Justin's Story Part 18:00 PM on TLC, 3 hr 2017 TV-14

Part 1 of 2. Two brothers weigh nearly 1400 pounds combined, and their father drives them 35 hours to see a doctor even though they can't stand each other.

Strap yourselves in.... this could be rough.

BWAHHAHAHAHAHA. Sounds tooooo good. Y'all can come over and I will serve the Margaritas!

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10 hours ago, Dru Blood said:

Actually KateHearts, I really do think it's lipedema.  As I stated up thread, if you look at the images of individuals with lipedema, they look more like Tracey then people with lymphedema, which isn't usually as symmetrical as Tracey's was.  A large proportion of people diagnosed with lymphedema have an asymmetry to the swelling.  Tracey's legs looked like two giant telephones poles, equally huge.

Yesss!  And the lipedema sufferer can actually get lymphedema on top of it making the swelling even worse, which I suspect had happened to Tracey.

Thank you... I learned something today. I'm sure these people's sheer weight can lead to lymph obstruction/lymphedema, which is what they seem to be saying in the voiceovers. But the massive amounts of fat sure sound more like lipedema.

thanks!

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39 minutes ago, KateHearts said:

Thank you...

Don't worry KateHearts.  It really looks like this disease is so under recognized that it is no wonder so many people think it's lymphedema.  Not to mention, lipedema sure sounds like another disease called lipidemia, which is excess lipids in the blood, and who knows, with these peoples eating habits, they probably have too!  It just wouldn't show externally.  What I find really disheartening is that according to the wiki info on lipedema, only 2 countries in the world even have a diagnosing protocol on this disease.  Sad.

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12 hours ago, Dru Blood said:

Actually KateHearts, I really do think it's lipedema.  

Yesss!  And the lipedema sufferer can actually get lymphedema on top of it making the swelling even worse, which I suspect had happened to Tracey.

I think Tracey herself explained it this way near the beginning of the episode, IIRC. And she did say she had lipedema. 

Edited by Tabbygirl521
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On 3/26/2017 at 0:34 AM, Ocean Chick said:

We have seen episodes where he tells them NO soda.  They just don't it every episode.  He's explained that the carbonation can expand the stomach and undo the surgery.

Dr Now has also told them NO juice.  So many think because it's juice it's healthy not realizing the high sugar content.

hookedontv - It bothered me too that Tracey was eating the nuggets in one bite.  You would think she would have enjoyed them more by taking smaller bites.

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How many surgeries does Tracey need for her legs? I only remember seeing the one done. Was it going to be another 5 or 6 times? Sounds like it was extremely painful for her. I wish she could have had something done sooner and hope she is doing well now. 

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IDK, the nutritionist was not a good one but that may be due to contracts about products. Because I can't believe she found sugary yogurt in the fridge and didn't advise her NOT to eat it. Or advise that plain nonfat yogurt is better because of its lack of sugar. So what is it? Sugar or no sugar. I have a sincere dislike of tv health advisors because of the limited truths they share with the patients and clients. It's like one doctor said on a documentary I watched this weekend... "I cringe whenever I hear the advice given on The Biggest Loser."

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Watching the Super Sized episode, I was kind of interested in their stop in Little Rock. They seemed to be staying within their means - they were at a rather low cost hotel (I could tell you the exit even, having lived them for 20 years.) It's not in the best area, and there isn't anything but truck stops around it. They seem to be the most functional people I have seen in several seasons.

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2 hours ago, ethalfrida said:

IDK, the nutritionist was not a good one but that may be due to contracts about products. Because I can't believe she found sugary yogurt in the fridge and didn't advise her NOT to eat it. Or advise that plain nonfat yogurt is better because of its lack of sugar. So what is it? Sugar or no sugar. I have a sincere dislike of tv health advisors because of the limited truths they share with the patients and clients. It's like one doctor said on a documentary I watched this weekend... "I cringe whenever I hear the advice given on The Biggest Loser."

I believe she did both.

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5 hours ago, ethalfrida said:

IDK, the nutritionist was not a good one but that may be due to contracts about products. Because I can't believe she found sugary yogurt in the fridge and didn't advise her NOT to eat it. Or advise that plain nonfat yogurt is better because of its lack of sugar. So what is it? Sugar or no sugar. I have a sincere dislike of tv health advisors because of the limited truths they share with the patients and clients. It's like one doctor said on a documentary I watched this weekend... "I cringe whenever I hear the advice given on The Biggest Loser."

I'm thinking that the yogurts are low calorie/sugar. They're not too bad. Stevia is a good natural sweetener.

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For the record, I believe she had lipedema that turned into a severe case of lymphodema.  If you have ever seen the second part to the half ton killer, Mayra Rosales had a much more severe case of lymphodema and was also a patient of Dr Now.  It's been years since I saw that documentary, but I believe he had to do surgery on her too and I distinctly remember one scene where her fluids were draining so heavily, that it was dripping off of her hospital bed.

I also have a (self diagnosed) case of lipedema that turned into lymphodema (diagnosed)--but not nearly as bad.  It's nearly impossible to get a doctor to acknowledge the lipedema because they just think you have fat legs.  Dieting and sodium restriction have very little effect on both lipedema and lymphodema, although losing weight does help somewhat as it will allow the doctors to see the problem.  For me, I only sought treatment for what now has turned into lymphodema in my legs because after I got down to 150 after bariatric surgery and was a size 6 up top (you can see my whole ribcage), my legs still looked plus-sized and they swelled like a mo-fo.  Then it was an uphill battle to get them to send me to a lymphodema specialist...AND I ended up having to pay "out of network" prices.   The lymphodema clinic tightly wrapped my legs for two weeks (looked like my legs were in a cast and I couldn't get them wet), then prescribed me hard core compression stockings.  To this day, if I don't wear my compression stockings, I swell like a mo-fo.  It never goes away.  

Another treatment for specific for lipedema is water-jet assisted liposuction (WAL) - but good luck affording that.

So what I bet happened in Tracey's case is that doctors didn't take her condition seriously (perhaps it was her medicaid status?) and she gave up and it got way out of hand.  Lately, I have noticed that fighting for the best medical care can be a full time job.

On the topic of the Cleveland Clinic...I visited them here in South Florida for bariatric surgery and the hoops they make you jump through are ridiculous.  We also tried to get my husband in to the Mayo Clinic once for a consultation on his trigemenal neuralgia and ended up giving up on getting an appointment.  These clinics are very picky.

One more thing about Tracey - I agree if it weren't for her legs, she would just look like any other "fat" person.  Most people who get weight loss surgery are just "regular fat" and not 600 pounds...just food for thought.

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On 3/25/2017 at 11:41 PM, chickenella said:

Why  not the diet? I know it's probably because it's full of chemicals, but I like to drink a diet soda every few days with dinner. Polar Orange Dry, omg I love it.

Diet pop/soda is actually worse for you than regular. Because of whatever is in it that makes it 'diet'. 

I've actually had a doctor ask me if I drank pop and I said yes, a couple times a week, and she said "I hope it's regular and not diet".  

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On ‎3‎/‎22‎/‎2017 at 3:17 PM, Christina said:

The lack of support from Dr. Now to his patients is a failure of editing. We have seen, in the past, the long process before surgery, including visits with nutritionists, and support groups, along with therapy being required before surgery. 

ITA, TLC should show (at least on one of these episodes) the packet of information and pre-surgical dietary discussions his bypass patients receive before they get their surgery/bypass.  IIRC, a couple of his patients (last season) also mentioned that he had provided them with appetite suppressants. 

http://www.drnowmd.com/hos/Pages/OutreachPages/Nutrition.html

Tracey didn't end up getting bypass surgery;  I've never seen anyone that carried so much weight in her legs.  I also gave her a pass when she said "Ow my legs".  Her legs looked incredibly painful and I gave her kudos for still trying to walk.    I felt bad for her and actually clapped when she was able to sit in the front seat of the van with Anthony.  I also liked Anthony in general, unlike many of the others, he didn't coddle or over enable Tracey; he even called her out for eating chocolate ("oh, but it was only a couple boxes of four chocolates" per Tracey) in front of Dr. Now. 

This episode was a HUGE (yeah, pun intended) improvement over James. 

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On ‎3‎/‎22‎/‎2017 at 8:54 PM, GeorgieNY said:

It looks like Lipedema, which leads to lymphedema. Reading about Lipedema, it says dieting does not help this condition. I feel terrible for her. 

Just finished watching Tracey's episode.  I DVD them, so I can FF through the commercials.  I'm curious, since she lived in Lorain, Ohio why she hadn't gone to the Cleveland Clinic (about 1/2 hour from Lorain) where they have a clinic/program especially for patients with lymphedema and also offer therapies for lipidema.  The Cleveland Clinic also has an obesity program. 

I would think a half hour car trip would be preferable to riding 20+ hours to Houston, TX.  (Been there, done that - but not sitting in the back of a van) and being a relatively fit individual, that trip (even w/an overnight stop) is a bitch.   I was impressed how pleasant she was compared to James after enduring the trip to Houston. 

Sorry to all that mentioned going to the Clinic in earlier posts.  I just watched the episode tonight (Tuesday) and hadn't read all the comments that were posted yet.  BTW, the Cleveland Clinic sees/treats patients regardless of their ability to pay.  It's a great facility, I drive five hours to their Mellen MS Center, since the physicians in my area seem to remain clueless about this disease. 

Edited by zoemom
Clarification
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On 3/29/2017 at 0:51 AM, zoemom said:

Just finished watching Tracey's episode.  I DVD them, so I can FF through the commercials.  I'm curious, since she lived in Lorain, Ohio why she hadn't gone to the Cleveland Clinic (about 1/2 hour from Lorain) where they have a clinic/program especially for patients with lymphedema and also offer therapies for lipidema.  The Cleveland Clinic also has an obesity program. 

I would think a half hour car trip would be preferable to riding 20+ hours to Houston, TX.  (Been there, done that - but not sitting in the back of a van) and being a relatively fit individual, that trip (even w/an overnight stop) is a bitch.   I was impressed how pleasant she was compared to James after enduring the trip to Houston. 

Sorry to all that mentioned going to the Clinic in earlier posts.  I just watched the episode tonight (Tuesday) and hadn't read all the comments that were posted yet.  BTW, the Cleveland Clinic sees/treats patients regardless of their ability to pay.  It's a great facility, I drive five hours to their Mellen MS Center, since the physicians in my area seem to remain clueless about this disease. 

Yes!  And what the hell is wrong with her to let her legs get that big without some kind of medical intervention years ago?  I mean her legs were triple the weight of her upper body, there had to be some doctor somewhere to see that her legs were not merely the result of over eating.  What is wrong with people?

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I see a lot of people mentioning that Tracey has lipedema. I would have to say they are absolutely right. I felt so bad watching her go through this and then listing to Dr. Now's complete ignorance. I was first diagnosed with lipedema approximately 12 years ago. There aren't many doctors who know the diagnosis protocol but there is a protocol. Excessive weight gain after child birth, swelling that does not include the feet, painful when touched are the main criteria and Tracy had it all. She would have been better off going to New York where there is a surgical specialist, but at least she found relief in a round about way. Hopefully Dr. Now gets some education on the subject as there are very specific surgeries for treatment and lack of knowledge can cause so much more damage. 

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On ‎3‎/‎23‎/‎2017 at 7:57 PM, operalover said:

I am rewatching. She really got around so much better at the end of the episode when she lost the 200 pounds . I didn't think I could see much difference, but now watching again I can. She could not walk a few feet. I think if she didn't need 6 leg surgeries he might have done the bypass. Just she does not need another surgery on top of the many that she is going to have. And it seemed so painful. 

Hi. after rewatching, did you notice the hotel room in Little Rock?  The Room at night had hard wood floors and lamps over the bed.  That morning, the floor was all carpet and there were pictures over the bed. The room was completely different!

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I just rewatched it, and didn't notice, but someone I rewatched the other day seemed to forget her husband at the therapists.
Guess there's no continuity person for this show.
Maybe she's just supposed to know, or he told her not on camera, but I'd think low salt/sodium would be stressed at least as much as protein.

Edited by auntjess
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I'm only halfway through the episode but it's hard to imagine her succeeding when she's deathly ill with cellulitis and Dr Now tells her that her lack of protein and excess carbs is the reason she's ill and she continues shoveling in the carbs. Of course all the while complaining about how sick she is. I hate to say it because she seems to have a good heart but she's pissing me off. My son has inoperable bladder cancer, he did nothing to cause his suffering and he's never whined like this woman who caused her own problems yet continues the behavior.

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On 3/23/2017 at 1:28 PM, ClareWalks said:

Agreed. I didn't throw up but I was nauseous all day, and even though I'd been kind of a health nut up until pregnancy, I ate a TON of McDonalds in the first trimester. The thought of eating raw veggies (which I'd eaten every day before) made me retch.

I really craved pickles during my pregnancies (the typical preg craving).  The vinegar really settled my nausea.  

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