Small Talk: The Prayer Closet

[Love2dance]

We were on a zoom call at noon our time, but you and sweet son have been in my thoughts today, @lookeyloo. I really hope the procedure has brought him some relief. 

[Zella]

@lookeyloo Was thinking about you and your boy today at noon your time and then noon my time. 

[crazycatlady58]

3 hours ago, DangerousMinds said:

I am enjoying my schadenfreude right now. Can’t say anymore! 🤣

I am having trouble with this. I truly never want someone to be ill....however maybe just a little so a lesson may be learned.  A little humility would be nice also. Forgive me mods.

[lookeyloo]

Thanks everyone. It’s been a rough day. Dr appt tomorrow where the future will be discussed. Lots of crying here today. 

[realityfan26]

1 minute ago, lookeyloo said:

Thanks everyone. It’s been a rough day. Dr appt tomorrow where the future will be discussed. Lots of crying here today. 

Sorry to hear this Lookey. I'll keep you all in my prayers.

[EVS]

2 hours ago, lookeyloo said:

Thanks everyone. It’s been a rough day. Dr appt tomorrow where the future will be discussed. Lots of crying here today. 

I’m so sorry, @lookeyloo. 

 

Edited October 5, 2020 by EVS

[Mindthinkr]

@lookeyloo I really hope tomorrow will bring some improvement to how your son feels and some encouraging news from his medical team. I’m sending positivity and best wishes. 

[crazycatlady58]

@lookeyloo.. hugs just lots of soft gentle hugs.

[Nysha]

@lookeyloo, sending peace and love for you and your family.

[Happyfatchick]

I usually love good news Sunday’s and I just kept dragging my feet today - hoping that LOOKEY would tell us something good.  And that didnt happen. 
 

bur hen late tonight I was able to have a text conversation. With my cousin who’s been in the hosp long enough to feel like it’s her permanent residence.  She had surgery #37 this week, and a birthday.  Lots of us had launched a birthday card campaign and she got over 300 cards.  She was thrilled.  So that’s good and that’s my happy Sunday news . 
 

I love you people.  I mean that.

[jjane]

Dearest @lookeyloo, I"m so sorry. I hope tomorrow will bring the best outcome possible for your family. Sending much love and gentle hugs to you all. Please keep us informed as you feel able. We are all here for you. Janet

[ChiCricket]

On 10/3/2020 at 7:56 AM, Scarlett45 said:

It’s my birthday today!! I’m 35!

Happy Birthday!! (you're still just a baby compared to a lot of us)😁

Edited October 5, 2020 by ChiCricket

[GeeGolly]

I'm up at 3:30am wondering why life can be so unfair. Why seemingly undeserved folks have everything they need and others go without. How the earth keeps spinning and lives keep living, when others are struck with health issues and tragedy. None of it makes any sense.

I often say to my clients, if I had a magic wand... Years ago a client gave me an adorable stuffed magic wand, that I still keep on my desk. I picked it up and waved it around a few minutes ago. Because why not. Something needs to change the trajectory of 2020.

[ChiCricket]

16 hours ago, GeeGolly said:

I'm up at 3:30am wondering why life can be so unfair

I'm up at almost 4am because I have an eye infection that won't go away, and hurts like heck every time I blink. My Ophthalmologist  put a "bandage contact lense" on it on Friday, but I can still hardly see, and I'm taking pain pills that don't seem to do anything but constipate me.😡 (tmi?😁)

 The worst part is the sensitivity to light  , I've had all my blinds and curtains shut tight for days..it's depressing af.

Pity, party of one, please.🙄

Edited October 6, 2020 by ChiCricket

[MonicaM]

I don't post a lot, but it's late and I can't sleep.  My husband went into the hospital this morning with abdominal pain, and will be there at least a couple of days.  The doctors are hoping the problem will get better with pain killers, fluids, and antibiotics.  If not, then surgery will be required, and it will involve a colostomy.  

My husband has a neurological condition and I'm his caregiver.  He needs to have his meds on time and they need to be right or he suffers.  On his best day he's about 85% mentally.  At the hospital, they managed to give him a painkiller that made him crazy.  He didn't know the year, and when asked if he knew where he was, he answered, "Hell".  He ripped out his IV, managed to tear off his wrist band, wouldn't stay in bed, but if he was put in a chair he wanted out of that.  He was way too loopy and disoriented to take even a step on his own, yet all he wanted to do was get up, and he kept yelling, "Let me out!!!"  He also got verbally abusive towards me and cursed like the most drunken sailor who ever cursed.  Normally he is a very gentle person, much nicer than his wife.  He really was in hell and by extension, so was I.

He finally fell asleep, but I wanted to stay to make sure he got his night time meds, and to see if he was better after some sleep.  I also wanted to be triple sure he didn't get any more of the drug that sent him off the rails.  Nope.  Visiting hours were over and the night nurse was super nasty with me.  The day nurse had told me I could stay later, so I was startled when she commanded me to leave.  

The nurse was dismissive of my concerns about his meds and mental state.  I was given a code to use if I wanted to call, and I left it at the hospital, so theoretically I can't even call to see how he's doing.  Probably wouldn't anyway because the nurse was awful.  She had just come on her shift, and I was startled at her attitude because the day shift staff had been mostly good. 

It was a very long, stressful day and I was tired and barely had anything to eat.  Now I can't sleep and I don't know how I'm going to function and face the situation with no rest.  Sorry this is long, I just needed to vent and it's too early to phone a friend.    As soon as the office opens, I'm going to call his neurologist and see if she can at least help with making sure his meds are right and have to be given on time, every time.

[ChiCricket]

19 minutes ago, MonicaM said:

It was a very long, stressful day and I was tired and barely had anything to eat.  Now I can't sleep and I don't know how I'm going to function and face the situation with no rest.  Sorry this is long, I just needed to vent and it's too early to phone a friend.    As soon as the office opens, I'm going to call his neurologist and see if she can at least help with making sure his meds are right and have to be given on time, every time

{{{{{{{{ big hugs}}}}}}}}

1 hour ago, GeeGolly said:

I'm up at 3:30am wondering why life can be so unfair. Why seemingly undeserved folks have everything they need and others go without. How the earth keeps spinning and lives keep living, when others are struck with health issues and tragedy. None of it makes any sense

{{{{{{{Hugs for you too}}}}}}}}

It's early, but...

Edited October 5, 2020 by ChiCricket

[Lisa418722]

1 hour ago, GeeGolly said:

I'm up at 3:30am wondering why life can be so unfair. Why seemingly undeserved folks have everything they need and others go without. How the earth keeps spinning and lives keep living, when others are struck with health issues and tragedy. None of it makes any sense.

I often say to my clients, if I had a magic wand... Years ago a client gave me an adorable stuffed magic wand, that I still keep on my desk. I picked it up and waved it around a few minutes ago. Because why not. Something needs to change the trajectory of 2020.

I always wonder why some people are so blessed and they don't realize it and they certainly are not grateful because they just expect it.   

@lookeyloo keep us updated about sweet son's appointment.  We're still saying prayers for your family.  

@ChiCricket you have my sympathy (I have had a corneal erosion years ago, a corneal transplant, you name the eye issue I've probably had it).  

I'm having a pity party myself, but reading what others are going through helps me put things in perspective. Prayers, healing thoughts, good karma, whatever you believe in, for everyone going through "stuff" right now.  

[Madtown]

@lookeyloo, my heart breaks for all of you. I've thought about you most of the night. Hoping today the doctors can help with Sweet Son's pain. As @GeeGolly said, how can life be so unfair? Thinking of all you again today and with others here, sending gentle hugs your way.

@MonicaM, I hope things go better for you and your husband today. Hoping they can give him his medications on time. ((((hugs)))

@ChiCricket, hoping your eye feels better soon. Having eye problems myself once in awhile, I can sympathize. Can you get a different pain medication that will help better?

[Mindthinkr]

I woke up this morning and prayed hard for LookeyLoo. There were others too. 
@MonicaM I don’t know what that nurses problem was, but I wish she hadn’t taken it out on you and give you more worries overnight. It’s terrible not to be able to support the people in the hospital or care facility that need us during these times. I hope he got his meds (the correct ones) on time and today is a better day. 
@ChiCricket Wow. Sorry to hear that you have had so much trouble with your eye. I hope it resolves soon. Healing hug. 
I am sending everyone purrs from the Mindthinkr kitties. They work for me often and I hope they work for you too 

[kaleidoscope]

Much love and group {{{HUG}}} to all ♥

 

[DangerousMinds]

6 hours ago, GeeGolly said:

I'm up at 3:30am wondering why life can be so unfair. Why seemingly undeserved folks have everything they need and others go without. How the earth keeps spinning and lives keep living, when others are struck with health issues and tragedy. None of it makes any sense.

I often say to my clients, if I had a magic wand... Years ago a client gave me an adorable stuffed magic wand, that I still keep on my desk. I picked it up and waved it around a few minutes ago. Because why not. Something needs to change the trajectory of 2020.

Because life is absurd (Camus).

[jjane]

Dearest @lookeyloo, praying hard today for your family.

@ChiCricket, so sorry for your pain. Your eyes are so important.  I hope this gets better soon.

@MonicaM, keep up the fight for your husband. You are the one who knows what he needs and can tolerate. You need to be respected by the staff. I come from a family of nurses and I greatly admire them but there are some that jump too fast to keep families out of the loop. I know this from experience as a caregiver. Take care of yourself through this and push anybody you have to push. We're all behind all of you.  Much love, gentle hugs, and towering support. Janet

[Love2dance]

My heart is hurting for all our Small Talk family who are suffering, or whose family members are ill. Sending healing thoughts and hugs to @ChiCricket, @MonicaM, and of course. @lookeyloo. 

[Minivanessa]

2 minutes ago, Love2dance said:

My heart is hurting for all our Small Talk family who are suffering, or whose family members are ill. Sending healing thoughts and hugs to @ChiCricket, @MonicaM, and of course. @lookeyloo. 

Well said! And since I can't say it better, please accept my joining in on this. 

[Jenniferbug]

Catching up on this thread and I see I missed a lot over the last few days! 

@lookeyloo, my prayers are with you and your family. 

Happy belated birthday, @Scarlett45! 

[lookeyloo]

Thanks to everyone for yours kindness. We would like to extend it back to all of you who need the prayers, hugs and spirits lifted. 
 

we did not get good news. Hospice and palliative care being brought in. We are broken hearted. There is no chapter in the parent handbook about helping your child die and then living without them. 

[Oldernowiser]

Oh, Lookey, sweetie. I am so, so sorry.

[andromeda331]

1 minute ago, lookeyloo said:

Thanks to everyone for yours kindness. We would like to extend it back to all of you who need the prayers, hugs and spirits lifted. 
 

we did not get good news. Hospice and palliative care being brought in. We are broken hearted. There is no chapter in the parent handbook about helping your child die and then living without them. 

I'm so sorry @lookeyloo.

[Jenniferbug]

Lookeyloo, my heart is breaking for you. As a fellow parent, I can't even imagine what you're going through. Please know you and your family remain in my thoughts. 

[GeeGolly]

Oh @lookeyloo, as a parent, and as a parent of a child with serious health issues, my empathy is deep. As my heart breaks for you I will continue with thoughts of strength, love and comfort for you, Sweet Son and your family.

[Madtown]

@lookeyloo I am so incredibly sorry. My heart is breaking for your family. Know that all of us have all of you in our thoughts and prayers. Sending hugs to Sweet Son and the rest of your family.

[Liddy52]

@lookeyloo, Words are inadequate at a time like this, but you and your family are in my thoughts.  Sending prayers for strength, comfort and peace of mind. 

[jjane]

Dearest @lookeyloo, my heart breaks for you and your family. I know this is devastating and there is nothing I can say that will make it better. I can only wish you and your family strength for your walk as you accompany your sweet son on his journey. I wish you peace and comfort and of course I send you much love and warm hugs. Always here for you, Janet.

 

[iwantcookies]

@lookeyloo a biggest hug from me to you. I am sorry dear internet friend.

[crazy8s]

@lookeyloo  _ my prayer - may those that care for your son at this time be skilled. may every action they take with him be caring and gentle.

 

[Olliesmom]

21 minutes ago, lookeyloo said:

Thanks to everyone for yours kindness. We would like to extend it back to all of you who need the prayers, hugs and spirits lifted. 
 

we did not get good news. Hospice and palliative care being brought in. We are broken hearted. There is no chapter in the parent handbook about helping your child die and then living without them. 

@lookeyloo, I am so sorry that this is happening to you and sweet son.  There are no words that come close to adequately expressing how sorry I am.  You, sweet son, your family are all in my prayers.  

[Scarlett45]

@lookeyloo I am so very sorry. There are no words. You are doing all you can for your son now. Make sure to take care of yourself as well. 

[Westiepeach]

Oh, @lookeyloo, my heart is breaking. Sending so many hugs to you and your family.

[CherryMalotte]

I can't walk in your shoes lookeyloo.  I can't even comprehend what you are feeling.  But I walk with you, along side you, behind you.  Whatever you need, all of us are with you.   

[marypat57]

Dearest LookeyLoo and family:  I know that there is nothing that I can say or do that can change the news you received today.  Lots of hugs, virtual good wishes and prayers for you and sweet son.  If I lived nearby, I’d come and do laundry or deliver snacks or meals.
Cancer is vile, it sucks and I wish it upon no one. Earlier this year, my family had experience with an absolutely amazing hospice program.  The nurses were some of the most kind and compassionate people I have ever met in my life.  They could not have been more supportive of the patient and were so attentive to her needs .  I hope that you and your sweet son have nurses just like my family had.

[Zella]

Oh, @lookeyloo, I am so, so sorry. Your family is in my prayers. Wish I was closer and could do more. 

[emmawoodhouse]

Oh @lookeyloo, I am so sorry. Know that we're all here for you anytime you need us. ❤️

[sixlets]

@lookeyloo, there are no words to say how deeply sorry I am to hear about Sweet Son.  You have been in my thoughts and prayers often the past few days, and you will continue to be.  I found this online a few weeks ago, and it somehow seems to fit our little group here.  I hope you can feel the love and strength we are sending your way.

 

[ChiCricket]

12 hours ago, Madtown said:

Having eye problems myself once in awhile, I can sympathize. Can you get a different pain medication that will help better?

I had to BEG to get an Rx for the pain pills I got. I mean B E G...debase myself, cry my heart out in the doctor's office in front of everybody..so..probably not. 😢

 

[ChiCricket]

On 10/4/2020 at 6:03 PM, lookeyloo said:

Thanks everyone. It’s been a rough day. Dr appt tomorrow where the future will be discussed. Lots of crying here today. 

I'm so sorry.

[pinkie]

(((LOOKEYLOO & family))) 

[EVS]

5 hours ago, lookeyloo said:

Thanks to everyone for yours kindness. We would like to extend it back to all of you who need the prayers, hugs and spirits lifted. 
 

we did not get good news. Hospice and palliative care being brought in. We are broken hearted. There is no chapter in the parent handbook about helping your child die and then living without them. 

 

I’m so sorry, Lookeyloo. 

Edited October 6, 2020 by EVS

[MonicaM]

We got some good news today.  It looks as Mr. M won't need emergency surgery!  He probably will have surgery at some point in the future, but a planned surgery is easier on both the surgeon and the patient, and has a better chance for a good outcome.  He needs to have a colonoscopy in six weeks, so we'll know more after that.  In the meantime, he is to spend those six weeks on a low fiber diet.

He was also back to some semblance of sanity today.  He told me that yesterday he was hallucinating/delusional that he was being held in a castle where "they" were performing experiments on him.  No wonder he was combative, cursing, and verbally abusive.  

He'll probably spend another day or two at the hospital.  He's been on a clear liquid diet, and they want to start giving him more foods to make sure he can keep them down.  He also has to move his bowels to make sure everything is in working order.

The people on this forum are the best!!  My heart goes out to everyone having problems.  Like everyone else, I wonder why some seem to live charmed lives with small troubles, while others of us seem to go from issue to issue.  What makes that even worse, is that many of those people living a charmed life kind of look down on the rest of us as if they are superior because they do everything right, and clearly those of us in the trenches are doing everything wrong.

[iwantcookies]

@MonicaM Jill Rod the smug certainly would agree 

[Mindthinkr]

@lookeyloo I’m truly sorry to hear that. I will pray for strength for you...so sad. I will say as someone who worked in Hospice that there are a lot of wonderful people and resources. Use them. They help. PM if you need to vent, have questions or anything...really anything.